Resources for Parents/Guardians

• Pediatric Stroke Webinar Series — The Pediatric Stroke Network offers accessible family-centered videos to support parents and caregivers of children affected by pediatric stroke. Their channel brings together clinicians, researchers, and families to explain pediatric stroke, share lived experiences, and provide guidance on navigating medical, developmental, and emotional needs.
  • REINVENT-PT Lab Talk — This talk features our lab’s principal investigator, Dr. Sudha Srinivasan, discussing why there is a need for interventions that are fun, intrinsically motivating, and easy for families to implement into their everyday lives. She highlights our team’s work with ride-on toys as therapy adjuncts, explains what we have learned from recent research, and outlines the next steps in continuing to develop accessible, play-based approaches to support children with pediatric stroke.
• International Alliance for Pediatric Stroke — The International Alliance for Pediatric Stroke is a parent-focused organization that connects families with information regarding childhood stroke. They bring together medial guidance, practical caregiving resources, and a supportive community to help families navigate diagnosis and treatment. They offer educational materials, videos, and a Pediatric Stroke Family Tool Kit designed for parents and caregivers. They also provide access to a one-on-one online support network, giving families a way to connect with others who can share lived experiences.
• Childhood Hemiplegia and Stroke Association (CHASA) — CHASA is a nonprofit dedicated to supporting children, teens, and adults who have hemiplegia or hemiparesis due to early brain injury. They offer a wide range of resources for families including educational materials and a strong peer-support community. Their programs include online support groups, family retreats, and financial assistance such as orthotic grants.
• Go Baby Go Connecticut  — Go Baby Go Connecticut is a community-based program that adapts ride-on toy cars to support mobility, exploration, and play for young children with motor challenges. This program helps young children to become more independent and explore their environment through play.
• ClinicalTrials.gov – This is a public database where families can explore ongoing and upcoming research studies that their child may qualify for and benefit from.
  • Current Study — This is a link to our current research study on the clinicaltrials.gov website.
  • Past Study — This is a link to our past research study on the clinicaltrials.gov website.
• Oak Hill Assistive Technology – The Oak Hill’s NEAT Center is a statewide resource that helps children and adults with disabilities access tools that support independence, communication, learning, and daily living. Families can learn about available technologies, try out devices, and receive guidance on matching tools to their child’s needs.